**Disclaimer** I do not advocate that you make any changes in your own routine without consulting your physician.
I have a confession to make. Due to timing issues, I have not had an Orencia infusion since October. After that infusion, the next would have been over Thanksgiving weekend- after that I was crazy busy at work and then came Christmas and then I was in Rush. I have kept up on my Tramadol as well as the Flexeril and Neurontin that I take for my fibro but it's been almost 3 mos since the last infusion. I believe that means the drug is well gone from my system. When I realized that I would miss the first infusion, I was a little nervous. When I realized that I would miss the second- I was a little scared. By the third, I was in an "Oh Crap!" state of mind, especially since it coincided with the time of year when I am working 10-16 hours a day for several weeks. And then I noticed something;
The giant flare that I have been expecting? It hasn't reared its ugly head yet. Note I say YET. The longer I go, the more I worry that it is going to sneak up on me and kick me right in the butt. That said- I feel terrific. I feel better- in terms of my RA- than I have in just over a year. Yes- the RA is still there and I still have morning stiffness and evening achyness and though it's given me reminders when I overdo- generally I feel that it's just hiding there, waiting for its moment to pounce. I didn't even end up having to use my cane after all of those long days running around, lifting boxes and wearing myself out. That's the first time in a couple of years! If anything, this has given me more awareness in the difference in the way my body feels between the RA and the Fibromyalgia.
As for the Fibro- whooo-boy is it still talking to me. My muscles have hollered loud and clear to let me know that I am still in the grips of that particular illness. My back still devils me from neck to pelvis on a daily basis, the chronic fatigue is still ever-present. All of the muscles across the body feel like a bad toothache but I can live with it since the joints are not joining that symphony as much as usual. I also feel that if I were able to make it to my yoga class (or had the discipline to do it at home) that I have missed due to my work schedule since Thanksgiving- even my fibro might settle down a bit. I know for certain that when I make it to the Y to go to my yoga class and spend time in the therapy pool, the pain in my muscles eases to a dull throb.
So my "plan" is simple. I have my next appointment with my rheumatologist in February. Assuming I have no RA flare (knock wood) between now and then, I will talk to her about NOT going back on the Orencia- not going back on anything- until such time as my body tells me that it's time. Tuesday I am going back to my yoga class and am planning to go early so I can do some time in the hot tub end of the therapy pool as well. I am also going to look at my schedule and see when else I can carve out time to go back the therapy pool and do some exercising in that pool. I am also going to try again to....wait for it....quit smoking
. I have a cache of the "electronic" cigarettes ready to go. This will help me ease into it rather than going cold turkey because I tend to get REALLY ugly when I go cold turkey. In the mornings, my no smoking plan is to get out there, rain or shine, and take a walk while my coffee brews. That I am going to start this weekend so I can make it a habit. I have my iPhone ready- my music loaded on and earbuds waiting, sweats (with pockets) that are comfy to sleep in so I can just get up and go. I have sneakers pulled out and ready to be put on. The goal is that by 45 (which is FLYING toward me) I will be smoke free and still off the "big" meds.
I just hope that by finally "talking" about it- I don't jinx myself!
Happy Friday everyone!